People say that a career in law enforcement can change you, and for me it did - spending eleven plus years of seeing nothing but the worst in people did make me a little cynical and negative. Over this past year though, I have been a recipient of the good that there still is in so many people. The overwhelming gestures of kindness by complete and total strangers who have heard about Kaleb’s story has just been amazing. The volumes of people that attended our fundraiser and donated money was incredible and while at his fundraiser last weekend, a young girl who attended was so moved by his story that she and one of her friends set up a lemonade stand the next day where they raised $50 to support research and finding a cure for Sandhoff’s Disease. A lacrosse coach at a local high school read Kaleb’s story in the newspaper, contacted us and wanted to help by selling our wristbands and having the boys on the team wear them. They invited us last night to attend their last home game so that they could make a presentation to us of the money they had raised, and it moved me to tears to see all these boys, who don’t know our family at all, wearing his wristband and raising money to help find a cure. They also collected money from others within the community and the generosity of one family in particular was beyond comprehension for me.
People keep telling me that God picked us as Kaleb’s parents for a reason, and although I would have rather He not pick Kaleb to have Sandhoff’s disease, I am proud to be able to say that our little Angel has touched the hearts and lives of an unbelievable amount of people. That people all over now know about this horrible disease and are helping us to fight for a cure. One day, in the not so distant future, another family will be diagnosed with Sandhoff’s Disease and for them it won’t be the devastation that we are faced with now, there will be a cure and Kaleb will have helped to find it - they may not know it, but we will.
Thank you all for caring enough about our little guy to help us find a cure!
Just a quick update and THANK YOU to everyone who made donations through our website, to those of you who came out and donated your time and/or money! This dinner was even bigger than we could have imagined and we couldn't have done it without all of you! Thank you all for caring so much about Kaleb!