People keep telling me that God picked us as Kaleb’s parents for a reason, and although I would have rather He not pick Kaleb to have Sandhoff’s disease, I am proud to be able to say that our little Angel has touched the hearts and lives of an unbelievable amount of people. That people all over now know about this horrible disease and are helping us to fight for a cure. One day, in the not so distant future, another family will be diagnosed with Sandhoff’s Disease and for them it won’t be the devastation that we are faced with now, there will be a cure and Kaleb will have helped to find it - they may not know it, but we will.
Thank you all for caring enough about our little guy to help us find a cure!